Updated: Jul 8, 2019
The British Paediatric Surveillance Unit along with Child and Adolescent Psychiatry Surveillance System are conducting the first every UK ARFID surveillance study.
By using questionnaires sent to paediatricians through the British Paediatric Surveillance Unit (BPSU) and psychiatrists through the Child and Adolescent Psychiatric Surveillance system (CAPSS), aim to establish incidence rates (number of new cases) of ARFID in children and young people presenting to secondary health care, referral pathways, patterns of presentation, and clinical features (eating behaviours, medical complications and the types of medical or psychiatric presentations it is associated with).
"We are thrilled to have been approached by the BPSU, and are looking forward to lending them as much support as we can." - Nicole Kirkland, ARFID Awareness UK Co-founder
By comparing rates, presentation and management of ARFID with other countries, as well as generating new priority research questions that could in turn inform decision making to better match patient need with sufficient funding allocations, it is hoped that the study results will prompt further research into information on prognosis, long-term outcomes and treatment of ARFID.